FIONA Raverty’s disabled son Dylan is a whopping $65,000 worse off under his new NDIS plan.
The Echuca single mother has applied for a review of the plan, but says if it isn’t changed she will have no other option but to relinquish care of the 24-year-old.
Dylan has an intellectual chromosomal disorder, as well as autism, is non-verbal and needs fulltime care.
Under his former Victorian Individual Support Package (ISP), he was funded to attend Murray Human Services three times a week, CLRS twice a week for day programs and a respite house every second weekend.
‘‘When we changed over to the NDIS when it first came in, I was a bit dubious but I expected things to remain the same at least and progressively I expected them to transplant the Victorian system into the national system,’’ she said.
‘‘That hasn’t happened. He has been significantly under-funded. He’s gone from 26 weekends a year to nine.
‘‘So by October, he would have used up all his weekends.’’
Ms Raverty applied for a review about six weeks ago but has still not heard anything from the National Disability Insurance Agency.
‘‘I get that it’s a new system but it’s put families and individuals under great stress,’’ she said.
‘‘I’m hopeful of a favourable review, but if I don’t get the care that I need, I have no other choice but to relinquish care.
‘‘And with Dylan and his behavioural problems and his comprehension, it wouldn’t be ideal because he wouldn’t know what was going on.
‘‘He would not only endanger himself, he would be a danger to any carers looking after him.’’
Ms Raverty said all she wanted was the funding she had previously had to give Dylan the care and support he needed.
‘‘I want to look at what I can do in the future,’’ she said.
‘‘I want to build a duplex and have him live in one side and me in the other.’’
Ms Raverty said she understood the NDIS was a new system but the whole situation had been extremely worrying and draining.
‘‘It’s really polarising as it’s a constant in your life,’’ she said.
‘‘As a parent, you do what you can for your child, but when it’s restricted ... it’s very upsetting.
‘‘Because Dylan’s needs are so complex, as much as it’s meant to be focused on the individual, the whole planning aspect isn’t suited for individuals.
‘‘You’ve got to fit into the government’s little boxes but they’re trying to figure out how it works and hopefully it will all work out in the end, but there is no support in that transition time. I think that’s what’s missing.’’